Saturday, November 7, 2009

The end of the blog...I didn't even last a year.

I try to collect my thoughts that flow so easily while walking or coming out of a dream. I think that body electricity lights up the writing part of my brain as I walk. How can people write sitting? It totally baffles me..yet here I am. Sitting...for a moment.

At the beginning of last year, I started Facebook and a Blogspot blog. I made many mistakes. The first was telling everyone about it and linking my blog to Facebook. It started out as a spiritual blog and oops, just like falling after walking on a slick spot, I got diagnosed with breast cancer again. Ugh...not another cancer blog. It was good to write about my experiences, but they are not the point of my life. It was like having a phone conversation and then your mother asks you a question and .... (long time)....hey, I'm back.

So about being public with a spiritual blog. Not good, not if you are really going to tell all and do all. I have people who I have to look normal for and I can't do that if they are reading about my spiritual adventures. So, Adieu to my lovely Blogspot and welcome to moontown cafe, if you happen to chase me there.

Thursday, September 10, 2009

A perfect moment at the river's edge. A blue heron grooming it's plumes carefully ignoring any activity in the parking lot. I hear plops in the water from fish and frog, muffled by the steady beat of crickets. This edge is drying, rocks and clams exposed. I see the stems attached to the lilypads and I meditate on the illusion of floating the pads enact all summer.
My sole cloud on the horizon. Solitary creepy guy lounging here. Why is there always a creepy guy in my nature quests? My longing for a dog as companion in these moments grows.

Thursday, August 27, 2009

End of Summer

I sometimes feel a little sad about the end of summer this year, as I missed it being sick. Then I remember how good I have it and rejoice in all the time I have spent in the sun, swimming, hiking, etc. Those times may have been few this year, but I have the Autumn warm days yet. Besides, July here was rainy and cold, so I was not alone in my summer longings.

This week, Arthur finally has some vacation time, so we went hiking at Sugar Island, went to the in-laws and crossed the Grasse River wading, because Maddy and Paddy had done it the week before and If a child can do it, so should I. Today, I am going to visit Julia at her Adirondack group home, this week is the Potsdam Village sale day, and September will be glorious for me.

So here's to the near future.

Saturday, August 15, 2009

Experimenting with plein air painting, definition, painting like the Impressionists, quick, outdoors, with only a few colors. Lay down a base color and add highlights to create shadow and shape.
Problem one, I only have acrylic paints, which dry to quickly in the hot air to be worked well. Problem 2, I didn't bring a palette, mixing paints on the surface from the tube. Problem 3 no glass of water to cleanse and refresh brushes.
Interesting, I learned a lot.I plan to keep at it, until I develop a technique and over work my failures as they dry.
Beach weather, finally. Lucky me with a river in the backyard for quick dips.

Wednesday, August 12, 2009

Hello!

Don't you hate it when people start a blog and then don't post!!! Sorry. It was on my mind.
I am cancer free and done with radiation. The last week of radiation did me in. They intensify the last week and I just couldn't go on as I was. I asked for a medical leave and was cut loose instead from my job.
I slept for a few weeks a lot. July was a hectic week with unexpected car repairs, turbulence with neighbors and bad weather.
August has been much better. I would say I am 75% of the stamina level and energy that I was at this time last year. I am getting better. My skin is 90% healed from the radiation. It is weird having a suntan under my clothes.
I am very tan though from grabbing each instant of sun here. It rained at least a while each day for a long time. Storm yesterday and today also.
I have hiked a little and swum. Wears me out though.
Arthur and I are getting along well. The cats are happy now that their neighbor cats are gone.
I have a full fridge and freezer for winter. Need to get about 20% more supplies for the winter. I hear gas and food will go up again.

Friday, May 29, 2009

Hitting the Wall

I hit a wall Weds. Afternoon. I went to radiation and was exhausted immediately afterward. I could have curled up and fallen asleep in the car. I was sick on Thursday with upset stomach and fever. Friday is here and I had a while of energy, ran errands and then was tired again. You may not see me again until July at this rate.
I did have some good news about going to the Martin Farm again for the first time this year. I love getting all my food locally from people I really like. We bought tomatoes for the Thompsons. Daniel put in a green house in Feb. He planted the tomatoes in the ground and they have been harvesting them all this spring. Apparently, they're great (I am deathly allergic to tomatoes, so I wouldn't know).

Monday, May 25, 2009

15 days down

Well, I have been very much enjoying the sun lately. The cats and I have fallen into our summer schedule of walks, sitting out, while reading, back in to check the e-mail, then out again.  It's amazing how easily one falls back into old habits.
We haven't seen the geese babes for a week, while the parents have taken them to the island. I leave out bread for the geese each day, which the geese treat as poison while I look on and gobble down as soon as I turn my back.
Sunday, I went to the Pierrepont Park and was amazed at how flooded the river is from the hydro project. My favorite little beach is gone at the entrance, but there are a few little spots left untouched around the curve.
 I went to Chase Mills to visit the Thompsons and Sandi. We went down to the river, but didn't stay, as it was buggy and the water was high.  It was amazingly cold there up near the hose. Alan put on his parka and wool hat, while we took photos for Julia.
It was my first trip to Martin's and I am so glad to go back there.  I spent every cent as usual. I stopped to have Scoopacino's local strawberry ice cream and ate it at the gazebo in Ives Park. Welcome to my summer.

Monday, May 11, 2009

Radiation day 6. I seem to get sick every other day. Was very ill Weds. and Sat. The days off from being ill, I am very energized and not getting enough sleep.
I know I am a little off, enough at my best. I am not concentrating well.
We have 3 goslings in the backyard (actually James' backyard, since he feeds them). They are about 1 week old. They have left the fluff yellow down stage and have grown twice their size. They are now a mid-tone brown and have a goose shape.
I am encouraged that things are well, although summer (which, actually is not here), seems to be flying by.

Wednesday, May 6, 2009

Hello from a sack of potatoes (Irradiated)

I have decided after 3 treatments that it's not like being a dog at the vets, but more like being a body at an autopsy.
I have 30 more treatments of being " a sack of potatoes" for my radiologists to haul around and arrange. Do I glow in the dark?? Not yet.
Side effects, mild chronic nausea and fatigue, with an inability to sleep well, crazy dreams consistently about poorly filled in paperwork. Who dreams about paperwork?
Thank goodness I get 2 days off a week. I'll check the side effects then.

Monday, May 4, 2009

Radiation Day One

Well, I made it through Day One. It's a good thing I take my lunch at 2, leave at 20 after, go to radiation, come back at quarter to 3, rest for 15 minutes and work for 3 hours more. I am splitting the week. I work Mon, Tues, off Weds, on Thurs and 1/2 Friday (volunteer for library rest of day on Friday), of Sat and Sun.
I go to radiation, lie on a table, get hauled around like, as my radiologist calls it " a sack of potatoes", when I'm in prime position, the 2 workers run for the closet and I get 1 minute of radiation in one pose and 1 minute in another. By that, I mean the camera poses, I lie as if dead.
It's over with quick. My only symptom so far has been mild nausea. I am anticipating the fatigue and resting.
32 more treatments to go.

Sunday, May 3, 2009

No More Plastic!!!

I am refusing to buy things in plastic and/or packaging. It makes life more difficult, but as I find more solutions, I won't have to constantly be on the search for new products.
I have to be more patient for things, like, strawberries are my favorite food. Normally, I would buy CA ones in plastic all year round. The last time, I bought those, I refused a bag and was harassed at Walmart because of it. I had workers follow me from the checkout to the door, stopping every few steps to check my receipt and purchase. Walmart broke me of plastic strawberries. Last year, I picked my own, froze them and will do the same this year.
My goal is no plastic containers. I am breaking it this month, as I stock up a little on prepackaged food for my radiation regimen.
I also make my own detergent with no plastic involved.
Does anyone else feel like they are treated like a total freak for refusing plastic?? For going on 20 years, I have been a anti-plastic advocate, but I still get the same looks at checkout lines, etc. I went to a drugstore recently and after refusing a bag, the clerk threw it out. I asked for it back and within their sight, 20 steps away, I stuck it in the recycling bin. Excuse my language, but WTF!!! People are fierce about their attachment to plastic. If looks were lethal, I would die about 20 times a day.
Just stand outside a grocery store for a while and watch all the plastic come flying out. It is stomach turning.
Honestly, what will it take to get plastic packaging and bags out of our lives? Will I die a lonely plastic crank death? Will my dying words be "No More Plastic Bags!!!!"? Please help me to have a better death and make your own personal resolve of "No more plastic!!".

Tuesday, April 21, 2009

News from the radiation room

I am finally going to do it - from 5/4 to 6/13, I am getting radiation treatments. This means I will be spending a lot of time sleeping and drinking tons of water.
I go to the back room of the clinic for treatments. First, they make me change into a gown; why???, since I just have to walk across the hall and take it off. I get lugged onto a treatment table with a hole for my head, stirrups for my arms and a leg rest.
Today, I got my x-rays done and was tattooed. Apparently, they just wipe ink on your skin and take a needle and push some of it in. And, apparently, I am a wimp for saying it hurt (which it did).
My ladies take no guff from me. They push and shove and then, order me to lay still as they run out of the room. I am warned that they can see me and hear me. I am then forced to lie still and listen to oldies for 15 minutes.
When it's over, I am rushed into the changing room and headed out the door, with orders to come back tomorrow.
Is this what it's to be a car getting an oil change? A dog at the vet's?
I toss back my natural rebellion, because I am warned that if I move, I have to start over again. June, come soon. Please!

Monday, March 23, 2009

The Spring Door

I really dislike Spring in upstate NY. I dislike the wild weather mood swings, one day sunny and warm, the next an unexpected snow storm and chilly wind. I dislike not knowing which coat to wear out the door without checking. One thing, I loved about Minnesota was the gradual warmup. It was the first time I ever enjoyed Spring and felt under it's spell. Each day there in Spring is a marvel of newness, getting a little warmer, greener, bursting a little more with bud.

We woke up Sunday to a Snowfall unannounced by weather forecasters. The cats and I went first to one door and then the other. They had a puzzled look on their faces. They wanted to know why we were only going to the Winter doors, when what they wanted were the Spring doors, the doors that led out into Spring less than 24 hours earlier. After 2 days of chill, I look forward to tomorrow, when the Spring doors will return and days will get warmer.

Sunday, March 22, 2009

Spring

Geese honking all night long and now, Syracuse is in the Sweet 16. Yes, it is March in Upstate NY.

Tuesday, March 17, 2009

First Robin of Spring

The cats and I took our daily walkie to the river. Right in front of Max was a plump robin strutting in the yard. Max is still in his spring nervousness, so he missed it.
Down at the river, there is still ice on the banks and islands, with an occasional floe sliding by. 27 geese and a pair of teals were in the water. Max was stalking, trying to pretend that the male geese displays don't scare him to death. Not too much geese poop yet and little evidence of deer rutting.
There'll be days next month, when the sky is dark with the geese and the honks are deafening. After dark, the frogs will be mating, almost drowning out the geese. The groundhogs are running about in daylight now and bird songs fill the air.
It was 2 years ago, on a March day like this that I carried Max in his kittenhood down to the river. It was the end of February when he was rescued from the slammer of a cage in the Humane Society, who had rescued him in turn from an infancy of neglect and starvation. He shook all the way and when he sighted the river for the first time, he screamed. That seems to be the common cat reaction to the river, as Butchie and Sandi both screamed and shook when they first saw it and they were both full grown adults.

The sweetness of a small town

The Humane Society shelter up the street is in the running for a shelter makeover at zootoo.com. The officials flew into the North country for shelter visits here and at Watertown.
My street is full of shelter dogs in jackets, signs, buses of school children yanked out for the occasion.
There were signs everywhere, balloons and even a short motorcade.
It is amazing that a small shelter like the one here could compete with huge big city shelters and get so much support.

Monday, March 16, 2009

On being in limited company

For the newest of news. I went to see my oncologist to get hormone blockers. It is believed that breast cancer is caused by estrogen bits that latch onto cell and turn them cancerous (way simplified version). Hormone blockers either stop them from getting attached or stop your body from making estrogen in the first place.
My oncologist looks at my medical history and says "No way, I'm treating you. Your case is too rare and needs to go to a cancer center." Why is it always the women who send me off to cancer centers, instead of treating me?
So, I am either going to Burlington, VT. or Buffalo, NY for treatment. Either way, my visits are all paid for.

Spring in the North Country

Spring has finally come after an incredibly cold and harsh winter. Our snow has been gone for a while.
I drove to Minerva, NY today, in the heart of the Adirondacks. My stepdaughter, Julia will be moving to a group home there next week. It was truly winter in the mountains, but the bonechilling temperatures were gone. The mountains have a number of brown spots, but Whiteface kept to it's name.
We have had geese here for about one week and there is evidence of deer rutting in the back yard. I saw quite a number of does crossing the highways today, as well as some wild turkeys by the Thirsty Moose in Colton. The Moose crossing signs always get my guard up, but I've never seen one on a road.
Max has left me several dead mice as offerings and sleeps like the dead when he finally comes in. I took the cats out for our traditional "walkie" down to the river in the back yard and found that beavers had eaten a stand of trees, pretty good sized ones.
I can't wait for the faux beach next door to open. I can finally get some outdoor exercise. Everytime I try to walk in the neighborhood or to the village center, people pick me up and insist I ride with them. The news spread like wildfire about me being sick, so no one wants to see me walking.
I'm going to Minerva next Friday again, so will try to bring the camera and get some good shots. Hopefully a lot of the snow will be gone.

Thursday, March 5, 2009

Radiation

Well, it's set for me to have my body scan on 4/2/09. That is when a machine scans your body pre-radiation to make sure that you getting the right spots hit.
It's a marriage of a treatment. Once started, a regimen needs to adhered to. 5 days a week, 15 minutes a day. 28 days of intensive treatment, then 5 of generalized.
I am so glad to have it done before the hot weather hits, as the skin treated has to protected from the sun and the elements.
The side effects are a sunburn like rash and tiredness.
Apparently, by having this done, it has the preventative value of a mastectomy, while allowing me to keep my body intact. Also, dealing with any little time bombs that I have nesting under my skin right now.
My only complaint in general is that I am not completely back. I am still getting fatigued easily.
I am ready to be healthy again. So ready.

Tuesday, March 3, 2009

Radiation

As of today, I am pronounced cancer-free. The surgery was revised, proper margins were excised and the scars turned inward and glued.
Thursday, I meet with a radiology consultant. I feel that I have so many pro-con feelings on radiology.

Sunday, March 1, 2009

More

The only thing that worries me now is that the initial fatigue that I began feeling in late Nov./early Dec. has not gone away.

The last month I have gone crazy attributing things to cancer; I have a slight ache, cancer; a cough, cancer; tiredness, cancer.

History

  • Patients typically present with a firm, mobile, well-circumscribed, nontender breast mass.
  • A small mass may rapidly increase in size in the few weeks before the patient seeks medical attention.
  • Tumors rarely involve the nipple-areola complex or ulcerate to the skin.
  • Patients with metastases may present with such symptoms as dyspnea, fatigue, and bone pain.

Physical

  • A firm, mobile, well-circumscribed, nontender breast mass is appreciated.
  • Curiously, cystosarcoma phyllodes tends to involve the left breast more commonly than the right one.
  • Overlying skin may display a shiny appearance and be translucent enough to reveal underlying breast veins.
  • Physical findings (ie, the occurrence of mobile masses with distinct borders) are similar to those of fibroadenoma.5
  • Phyllodes tumors generally manifest as larger masses and display rapid growth.
  • Mammographic findings (ie, the appearance of round densities with smooth borders) are also similar to those of fibroadenoma.
  • Recurrent malignant tumors seem to be more aggressive than the original tumor.
  • The lungs are the most common metastatic site, followed by the skeleton, heart, and liver.
  • Symptoms from metastatic involvement usually arise in a few months but may occur as late as 12 years after the initial therapy.
  • Most patients with metastases die within 3 years of the initial treatment.4
  • No cures exist for systemic metastases.
  • Roughly 30% of patients with malignant phyllodes tumors die from the disease.

Causes

The etiology of cystosarcoma phyllodes is unknown.

Recurrent tumors

  • Recurrent malignant tumors seem to be more aggressive than the original tumor.
  • The lungs are the most common metastatic site, followed by the skeleton, heart, and liver.
  • Symptoms from metastatic involvement can arise from as early as a few months to as late as 12 years after the initial therapy.
  • Most patients with metastases die within 3 years of the initial treatment.
  • No cures for systemic metastases exist.
  • Roughly 30% of patients with malignant phyllodes tumors die from the disease.


cancer flameout

I get very depressed when I think of how aggressive phyllodes can be. Each time it comes back the chances are greater that it will be malignant and go straight into my lung.
Will write more about that later.

Saturday, February 28, 2009

Sleep

I finally slept for the first time in weeks. I shut myself in last night, woke up nearly 12 hours later. Oops...in pain, so I had 1/2 a pill.
I took a shower last night and hooray! the Bride of Frankenstein scars are gone! Instead, I have thin lines without even stitches. Oh, I am so happy. I honestly had been worried that I would have to sue to get my scars removed. They are gone!
I was thinking of having Ian create a tattoo design to hide the thin lines. What I want is like a spinning chakra design that goes around the breast. I have a scar at 6, 4 and 2 o'clock positions, so I thought the design could start with the root chakra at the 6 and move up to the crown chakra at the 12 o'clock.
I went to bed with wet hair and planned to wake up a few hours later to watch "Battlestar Gallatica" (only 4 more episodes!) I woke up with bizarro hair, but well rested for once.
The opiates keep me awake, the not being able to lie comfortably keeps me awake, the cats acting out because I am sick keeps me awake, my neighbor getting up at 5 am keeps me awake.
Tuesday at 8:45 I will get the pathology report and hope it will be good. The last time, I didn't worry because I felt if it's bad news, they usually call you immediately. But I had to wait a week for news of my last cancer, because the surgeon wanted to get several extra opinions. Phyllodes is a rare cancer, after all, and most doctors are anxious to deal with it. I honestly spend more time holding the doctor's hands and telling them that it's ok.

Wednesday, February 25, 2009

Donuts!

So, I'm checking my mail tonight and what's there but the lament of Lent and the sacrificial non-eating of donuts. Not doughnuts, like a little fry cake or something somewhat healthy, but donuts, with mega sugar, fat, the kind Homer likes. Donuts.

I never eat donuts, but you have to understand that because I cannot eat after midnight tonight and cannot drive for a week after that, I start to get food obsessed. Like on Christmas, when you know the stores are closed tomorrow and you might want___ so you better get it now, even if you never want it, you better get it now.

And everyone starts talking about donuts. The Dunkin here closes at 10, so I know, I've got to get the donuts. I buy 1 dozen chocolate cream and eat 3.

God bless it, don't talk to me about donuts, especially about not eating donuts, cause it makes me crazy.
I honestly believe it giving in to crazed obsessive thoughts, because otherwise they Bloom into real white knuckled thoughts.
So I ate the donuts and got it out of my system.
Please don't anyone talk to me about food for the next week.

Saturday, February 21, 2009

The Compact

It's funny, because I collect 20th century compacts, those metal containers of makeup and mirrors
women used to use to "freshen up" I love them because they are simple and affordable and they
express a girly blingness, the sparkily the better. They're cool and they don't break the bank. Then I found a different type of compact and it changed my life.
On 1/8/2008, there was an article in the Minneapolis Star-Tribune about a different Compact, a group of people in San Franciso, who made a compact, or a group vow, not to buy anything new for one year. The article was e-mailed to me in a sort of backhanded, "Here, look at these weirdos, you'll fit right in". I immediately joined the yahoo group of the compact and I did fit right in.
Now, there are over 10,000 members of the compact and only about 30 of us who post regularly, and a few hundred irregularly. Many have blogs, like the non-consumer advocate, where they write about like post-consumer.
Now, I will admit, I am not post-consumer. Potsdam does not have the resources for me to do so. There is no public transportation to speak of and no local goodwills. The closest decent market is in Massena and the freecycle does not have enough folks to give us all used stuff here. I do get some things and I curb my excess in warm weather.
However. my life has massively changed in the past year. I began shopping almost exclusively at Amish stands, farmers markets and the local co-op. My refrigerator, freezer and pantry is full of food, cheaply amassed. I eat only grass fed organic meat and rarely. I make my own detergent and degreaser and wash my hair with baking soda (try it, it's wonderful). I traded working hours to buy my new winter clothes. I walk downtown and to work so much, people have begun picking Arthur and I up and insisting we ride with them.
I am happier, my life feels more in control and I have made the goal to constantly take it further.
Here is article about the original compact http://www.good.is/?p=6390.
We have every type of person, right and left wingers, Christians, Jews, atheists, etc. Suburbanites, city dwellers, homesteaders, country mice, we have it all. One common ingredient, they are all thinking folks, who see things they want to change and by not consuming, they are changing their lives.
The compact has spread all over the country and in many countries.

The

I'm great from now on!

At the library volunteering this Saturday, several people took me aside to ask me how I'm doing. I told them I am great and will be cancer-free by summer.
I am incredibly blessed and lucky to be this way. I think part of it is pure contrariness (I am Aquarius after all) and part is taking part in healing exercises. I would never discount the skill of my surgeons and the technical prowess of today's machines at dealing with cancer. I also do not discount the power of prayer and reiki that has been sent my way.
Let's see if I still feel lucky when radiation starts, but I have summer on my mind.

Wow! rural Surgery is cheap!

Hi! Just got my bill (paid by Blue Cross) for my recent surgery, 3 breast tumors removed. For a private room, a meal, total surgery costs and 2 visits aftercare, $3, 517.24, my share $35. The care at Canton-Potsdam Hospital is great and it's right here in the village.
My insurance paid more than that to remove a loose screw from a bunion surgery in Minneapolis and the care was, well, well meaning and big city. That was with a skeleton crew and only local anaesthesia.

Thursday, February 19, 2009

Charity Appeal

My paperbackswap.com friend is doing a Cancer Walk in Chicago, IL. Here is the info:

http://info.avonfoundation.org/site/TR/Walk2009/Chicago?px=4561889&pg=personal&fr_id=1780&et=e_1HwuFjVQweHiScxeC2bQ..&s_tafId=334406

She is looking for donations and they can be small. I gave her two book credits and she's auctioning them off on the PBS site. See if you can help her out and give to a good cause.
She also is the MC of the annual American Idol contest, where, as of last night, I am tied for first place (with about 12 others).

Why a Duct? Because it's Duct Carcinoma in Situ

Well, that title does not make sense, unless you've seen Marx Brothers films. So, the vast majority of the Earth's population, will now say Huh?
Anyway, I have cancer Number 2. in another breast. (Would I have infinite amount of cancers for infinite amounts of breasts? What if I were a pig or dog? That's a lot of cancers).
Cancer number 2 is duct cancer in situ, stage 0, bordering on 1. In situ, latin for in place, means, it's in a milk duct and not moving or spreading. Just sitting. Small and hard, calcified, 2 centimeters of cancer.
Kind of creepy to have some tiny malignancy, just sitting in a alleyway of one's breast.
The thought is to have radiation and have no cancer by Summer.
That's the plan.

Phyllodes Tumor Renewed: or A New leaf

I have Phyllodes Saracoma and have had it since the late 70's. It is a rare form of breast cancer. It is called phyllodes from the Greek word for leaf, because when the sections are cut, they look like leaves.
In plain English:
Phyllodes tumors are a fibroepithelial tumor composed of an epithelial and a cellular stromal component. They may be considered benign, borderline, or malignant depending on histologic features including stromal cellularity, infiltration at the tumor's edge, and mitotic activity. All forms of phyllodes tumors are considered breast cancer, as even the benign form is regarded as having malignant potential.
Got it?
All right, for a translation. Phyllodes tumors are big tumors that appear out of nowhere, are big and fast growing and, did I mention, big. One day you wake up and you have a grapefruit sized tumor inside your breast. It doesn't hurt or itch or spread to other parts of the body. It's just big and annoying. Really annoying, mostly for the having to adjust the bra straps every 5 minutes to keep the blob in my bra from sticking out.
Less than 1% of all breast tumors are phyllodes. The common treatment for phyllodes is wide local excision. Other than surgery, there is no cure for phyllodes, as chemotherapy & radiation therapy are not effective.

Here are some cancer stats:

Breast Cancer Statistics

  • Excluding cancers of the skin, breast cancer is the most common cancer diagnosed among U.S. women, accounting for more than 1 in 4 cancers.

  • Breast cancer is the second leading cause of cancer death in women, after lung cancer.

  • One out of eight American women who live to be 85 years of age will develop breast cancer, a risk that was one out of 14 in 1960.

  • 2.4 million women living in the U.S. have been diagnosed with and treated for breast cancer.

  • An estimated 182,480 new cases of invasive breast cancer are expected to be diagnosed in American women during 2008. About 1,990 new cases of breast cancer are expected in men. In addition, an estimated 67,770 cases of in situ breast cancer (both DCIS and LCIS) are expected, with 85 percent being DCIS.

  • An estimated 40,930 breast cancer deaths are anticipated this year (40,480 women, 450 men).

  • The risk of developing breast cancer increases for women whose parent, sibling or child have had the disease.

  • It has been estimated that 5 percent to 10 percent of breast cancer cases result from inherited mutations or alterations in BRCA1 and BRCA2.

  • Women who begin menstruating before age 12 are at increased risk of developing breast cancer. The more menstrual cycles a woman has during her lifetime, the more her risk increases.

  • Patients with private insurance from all racial/ethnic groups are more likely to be diagnosed with stage I breast cancer and less likely to be diagnosed with stage III and IV than those who were uninsured or who had Medicaid insurance. While 89 percent of patients with private insurance survived five years, only 77 percent of uninsured and 75 percent of Medicaid patients passed the five year mark.

Information from Cancer Facts & Figures 2008, American Cancer Society.

Spring is coming

Soon the ducks will be landing in Lake James, which is created in my backyard each spring due to the runoff from the village dumped snowpiles. The sightings of strange animals and birds will begin. Wolverines, weasels, egrets, teals, geese, ferrets have been spied by various people around the lock. I have seen the weasel, ducks and geese. the rest, I am afraid, live in the world of imagination and early morning shadow.
Last year, there was some predator, mostly underwater, that we were afraid would eat the cats and ducks. I saw glimpses of wet fur and bony limbs.
The lake will be gone by May, when there is nothing left to feed it and the dry sand will be left. Within a month the ants will work where the ducks swam and the mystery creatures will have evaporated with the water.

Tuesday, February 10, 2009

Yesterday, I became a senior citizen. I am 55 years old and in some ways that makes me a senior.
I have always swore that when I became a senior, I would milk it for all it's worth and that is still true today.
Most older people I know are embarassed of their age, refusing to get the reduced fares, etc. Not I, if there is a deal to be found and I can get it, I will. Happy birthday to me!

Sunday, February 1, 2009

Life with Breast Lumps Part One Buffalo, NY

Well, I'll tell you what happened so far. Although going back to my relationship with cancer, I have to go back over 30 years. I had a mass on my right breast and it kept getting larger. No one equated caffeine with breast lumps, so I was a voracious consumer of coffee. The mass kept growing and growing.

I went to Dr. after Dr. in the outland where I lived. Each of the small town Misters, and they were all male at that time, said to me "You're young, it's just a huge lump, it's nothing, don't worry". Except I wanted it out, really wanted it out. I thought it would kill me but I was just another hysterical female.

My life went into deep freeze for several years. I moved home to recover from a health problem, and then my Mother's cancer got serious. So, I stayed and took care of her, dealt with my Father's rages, the isolation of a small town and pressure of being a single woman in my 20's. I spent my days plotting my departure, while doing laundry and bed baths, going to the doctor's and visiting the hospital every day when needed. I was the loyal dog, the one everyone kicked, but who stayed on, determined that I had a job to do. I couldn't walk away from someone who was seriously dying and so the time went.

After my mother's death, I got my license, my job, my apartment, my life back. I went back to college, but I still had the damn mass in my breast. Finally, someone told me to go to Planned Parenthood, not for birth control, but because they had women doctors, who were actually doing things for their patients. I went and the doctor was woman in her 40's, who was astonished and outraged by the fact that I had gone so long without having found anyone to do my surgery.

I was rushed to Buffalo General Hospital, where I was told surgery would happen the next week. I was ecstatic. Everyone around me was horrified. No one really believed how long I had waited for this day, and I became again, another hysterical woman, looking for a doctor to solve all my problems.

In those days, surgery was taken seriously. One entered the hospital for a lengthy stay, both before and after. Convalescence was taken; one got enormous amounts of time off.

The fact that I had no money was of no matter. Lives had to be saved and finances be damned in the old world of medicine. Ultimately, my surgery was so strange, my journey so long to the cutting table, my doctors donated the surgical costs just for the privilege of having such a strange case. My lump, my "grapefruit sized" mass was gone. I felt much better.

Two days later, I was evicted from the hospital, for being too healthy and young, for annoying my older co-patients with my walking, my singing, my radiance. I left with my giant x-rays, my diagnosis of pre-cancer and my life in hand.

The Journey Down the Mountain

I chose the title for this blog, because of a certain vision I was having, as well as the fact of character limitations for blogspot blogs. I wanted it to be "Dispatches from the Frontlines of an Ever Expanding Life that is Heading Down out of Isolation to the Shore of Life".
I was thinking that 2009 was the year for me having a great spiritual and physical journey. Most people would envision spiritual journeys as a trip up a mountain trail, ending in a cloud enshrined Nirvana. My vision of the year was coming out of isolation, out of the cold, out of the lofty and esoteric into the world of physical, the world of co-housing, the world of spiritual communities; a journey from the one to the many.
I had found that my spiritual quests had ended up with me more isolated and alone. I had chosen to move near the mountains, but found them too remote, too cold. I began to long for the warmth of the sun, for shores I hadn't seen before, for the call of gently gliding birds and the sound of waves. Come down from the cold ridges and walk towards the ever-expanding shores of a new life.
So, why not begin a journey by getting one's physical life in store. I had a 25 year relationship with tumors in my right breast, benign, huge, annoying tumors. I had the tumor of great size removed on more than one occasion. Each time, the doctors would warn, "it could be cancer", but it never was... not even close. So I just assumed when it grew back, that it was the same old thing.
But my doctor noticed something...that there was an older under layer of mass under the more substantial globe of tumor. New machines can detect finer areas of trouble in one's body and so it happened here. I had it all removed and the mass was instead of the usual grapefruit, it was the size of a baby's head.
On the other breast, there was spot, a small stable spot that had gotten hard. I had it biopsied with a sonogram and it was benign. So, the thought was to take it out, and oh, while we're there, might as well take out the 2 newer ones that had just appeared. Why not?
Except the new one, the one that we did on a whim, almost just because it was there, turned out to be cancerous.
And so now, my planned wonderful, whirlling, crashing down the mountain, rejoining life, great journey has to be, for a while, a cancer journal. Damn.

Monday, January 26, 2009

You Must Say Good-bye In Order to Say Hello

Hello to my blog and to 2009.

Before I start, I need to say a proper goodbye to 2008, my year tribulation and change.

Goodbye to the normal ideas of economy and money, of shopping. Goodbye to my car totalled in a bad pre-Christmas snow storm. goodbye to my idea that I strong enough to be hearty in the face that all the North in Winter can throw at me. goodbye to the idea that I want to spend the rest of my years in the North.

Goodbye to the infestation of climate change fleas that would not leave us alone and the ideas that emerged in reaction to it. To the Frontline, Advantage, Neem Indian Oil and a salute to
J. Allan Boone and his Kinship ideas of insect-human communication.


Goodbye to the start of my Reiki career and hopes that it will bloom on in the care of my Reiki Master Suzann.

Goodbye to my reliance on shampoo, detergent and other corporate Bad Ideas that creat bad health as they suck away our money. Goodbye to putting biodegradables in the trash system and for shopping for new items, when old will do. Goddbye and good riddance to any shred of acceptance that I have for the use of plastic in our world.

Goodbye to debt and the use of credit cards. Goodbye to outmoded ideas and the resistance to positivity in life. Goodbye to laziness, to Depression, to SAD, to incandescent light bulbs.

2008 was the last melting residues of old life, old ideas, old trusts, old reliances, the slavery of owing and of debt.

Hello to self-reliance, spiritual bliss, positive energy, beauty, freedom.

Hello and welcome to my 2009. I hope it treats you as well.